I continue to share the story my mother wrote, and even though it makes me think it moves me, it reminds me of so many things. Also since my brain was destroyed, and you don’t even know when someone reads it, I feel enormous gratitude.

It even reminds me of all the doctors I still think about their perceptions of their readings. So understand. I confess that I was already depressed, and I couldn’t get better and I don’t even know what my purpose is because of why I live. But now I understand how when we get sick we get to know each other better, and how this week I’m even going to post no doctor should think I could do that. But these days I’m not even ashamed of my losses, I’m grateful and even want to share how the path looks better. So I’ll show you my story.

03/28/17 – wakes up at 3:30 in the morning complaining of a lot of pain in the leg. Medicines: phenobarbital 250 mg and cortisone 20 mg, dipyrone, tandrilax, tanderil03/30/17 – return to Mutarelli and RETURN IN THE CASE. Dr Mutarelli says that Julieta does not have cerebral vasculitis and probably never has.

04/10/17 – Given the difficulty of talking to Dr Mutarelli, we decided to go back with Dr Karen. Juliet worse and worse. She can’t see, rolls her tongue, feels pain in her leg and there is no diagnosis. Until the day.

“03/21/2017 – At the suggestion of Dr Karen Fernandes herself, from Dr Getulio’s team and who had been treating Julieta, we decided to consult Dr Eduardo Mutarelli (H.Sirio Libanes). Dr Mutarelli examines and listens to Julieta for 1h50. Juliet in complete mental confusion. Examines, talks about cramps, prescription Quinine, Pregabalin and asks to see tests done at Samaritano in 2016. Long appointment but impossible to talk to Dr again. Mutarelli, with assistants only.“

“ 04/15/17 – Julieta starts off in the morning. She is taken to H. Samaritano where she remains for 34 days, 25 days in the ICU, 10 days intubated. She goes into a state of epilepticus, gets two hospital infections, a leg bends, the foot turns inwards and she is forced to do physiotherapy on the orthostatic board. Then she is obliged to use an orthosis. She needs to relearn to walk, to talk. She completely loses her memory and struggles to recognize people.”

“During the rest of the year, she undergoes five sessions of pulse therapy with cortisone and cyclophosphamide. Ends the year with 690 neutrophils.”

5/26/17, at Dr Karen’s request, redo the Angiography exam. This time, at her request, he arranges with Dr. Paulo Puglia who is emphatic: Julieta DOES NOT HAVE CEREBRAL VASCULITIS. And, just like Dr. Getulio, suggests that she must have an AUTOIMMUNE ENCEPHALITIS. It remains to find the trigger.

Since my first doctor I consulted and met was in London, running away from medicine. But I also know that even when I followed and fled I found several neurologists, and they changed the diagnosis.

I was living at that time in Lima in 2026, 2017, Peru and I returned to São Paulo, Brazil. But since 2008 I would go to Sao Paulo to see doctors and hospitals. And always Changed perceptions on what I have.

But my diagnosis :), as I did, and I ponder whether my epileptic seizure is well influenced by mental reactions – I’m disgusted with myself, or a loss of someone.

But useful in a way was not knowing how to focus inside my mind. But in a way the time I fall it’s like I’m blurring out of myself, and shifting to something else. That is, if we stimulate the brain we have to try to calm the brain and not stimulate thinking to become strong. But when I take medicine I go to the hospital.

01/17/20- 01/22/20 – H. Samaritano (6 days)Julieta feels severe headaches, and in the midst of a lot of mental confusion, she is admitted to H. Samaritano again, where she stays until 01/22. She has many MRI’s and EEG’s and is again subjected to pulse therapy with cortisone, various anticonvulsants, etc. Upon her arrival, in 4 hours the electro registered 90 electrical discharges, which according to Dr. Rodrigo, already configures status epilepticus. In 12 hours the discharges drop to less than 50. MRI, in turn, did not show new lesions.” But that time I had taken medicine, and I met Dr Rodrigo and he started a new path. But I tend to try to take medicine more seriously. I even managed to deal with the loss of my grandmother.

But on the 29th of 4th 2021 my friend Sho passed away. It made me fall. He lives in the USA this time, and we’ve known each other since 2001. We’ve always met around the world and in those months everything was fine we went to Asia 2018, he came to Brazil on the 19th and 2020. So when he disappeared and I went to the hospital again

05/05/21-05/19/21 – H. Samaritano (15 days)He collects liquor that is sent to the Mayo Clinic in the USA and, like the other two times, nothing is discovered. The MRI already shows two new lesions in the brain, one on each side. She complains that her hand is “locked” and has a lot of mental confusion. She undergoes 5 sessions of pulse therapy with Solumedrol (cortisone) and 5 sessions of Immunoglobulin. She undergoes a bone marrow biopsy and PET Scan.

In 2021 I lost my friend Sho. My diagnosis is the soul, it’s our mind and even learning from the fall. Now I also take Rituximab, Gardenal and Vinpat, and it seems that it helps me to eat and be aware the of food.

But now in 2023, I managed to tell you again meditate, and don’t get caught up in a diagnosis, and don’t even run away from medicine.

Never get stuck on a diagnosise, we just need to evolve from the inside of us. Yoga, helps a lot to meditate. And I even managed to make a song, and write :).

Our Oca, who we are, and another she is inside. My dear friends are all over the world. There are areas of our brain that we don’t even use, we have to wake up and not believe that we can’t try and improve.

Love , Jules

Again I share my story to not give up your hope. As I am to write , and to activate my mind, and brain. We have to not give up how we are. Because I know that People always say think understand that we think.

When I lived in Brazil , after my comas I was in the house of my grandmother , so I write, and how my mother said and think, and how I remenber. And to think what we understand in deferent way

My mind mam wrote ( 2014, 2015
“she keeps recovering, fragile, but she has no crisis. 01/18/15 – goes driving alone to Ubatuba. She meets Andre Cunha with whom she marries for the 2nd time in Sep / 15.“
But I remember differently, I was living with my grandmother and she always had don’t say all the time about coma, and I kept hope to be like I am .”

I kept driving, travel alone to to travel in Brasil. When I was in Manaus, I decided to take a boat to arrive in Columbia, I took a seat for both the transporter elderly people and bills what about going to small cities

When I got better in 2014, I told my grandmother and I wanted to know and travel in Latin America. My grandmother was never one to say things that talk about negative things. She said we’d see each other next year. I flew to Manaus, couch surfing, and decided to take a simple and cheap boat.

It was a boat that brings materials, and things from the cities, through the cities of the Amazon. I saw indigenous people and Brazilians. But I started to understand Brazil. Since even I am from Brazil but even I feel I am a foreigners in my country.

How could I not remember , I traveled hammock on the boat. At the bottom of the frame were the things that were transposed, and we were on top.

Since I always speak to everybody I even became friends with the captain. He was worried about me. There was a boy that tried to speak to me all the time and he was trying to make my things to be in his schoolbag. My old was open, since we are in the boat. But when I had told to this man who wanted to put in my bag the captain m. Manuel started to talk to me .

In any city that we arrived I would ask him if I could go out. They stayed for eight hours, I will go and see the reality over there

Here were children from the Amazon and were indigenous they would try to sell things for us. Mister Manuel was not worried about my problems of brain. He was shocked that I trust people.

But since I met André in Ubatuba in 2015, we decided to go to Venezuela to Mount Roraima. As if I were relax, but André is a million times more than me. As if he could trust humans more than me.

But in 2015 we also traveled to Chile, since I’ve always lived in many countries, and I’m curious to visit more countries.

I have lived in Peru in 2016

My mother has written .

2016
“ – Feb and Mar 2016 – Feels severe headaches and sees lights for about 3 weeks. Exchange ideas with Dr. Getulio but refuses to return to his office to redo the exams. She says that she “never goes back to a hospital or is treated using Western medicine, only Eastern medicine”. doctor Getúlio dies in Feb 2016. His headaches don’t get better and he decides to seek help from Dr. Caio Simioni who asks for an ANGIOGRAPHY. He finally has a diagnosis of Stroke and CEREBRAL VASCULITIS. She is again admitted to the Hosp. Samaritano where she undergoes pulse therapy and receives treatment with immunosuppressants. She feels sick, with the immunosuppressant, vomits and has dysentery.

-June 2016-She is depressed but still manages to travel alone for a month in Myanmar.

-August 2016-She moves to Lima, Peru, where she is only treated w / acupuncture with the Chinese, Dr. Pan. She reduces the cortisone from 40mg to 5mg all on her own.”

August 2016-She moves to Lima, Peru, where she is only treated w / acupuncture with the Chinese, Dr. Pan. She reduces the cortisone from 40mg to 5mg all on her own.”

And my dear friend Leila Alaoui died I went to the hospital and they do not have a Dr Getulio anymore, nome my friend Leila who called me to be present.

She came to my wedding in September 2015 in Brazil, and in January and February I lost my dear friend and my doctor died and I went to the hospital again.

Every day I see that anything that is emotional or spiritual it always make me fall down. So when I did not have it a doctor I have decided to go to Burma.

I wanted to go to Burma ( Myanmar) because of Vipassana end it came from there. The best thing I ever have done wants to learn about meditation and to deal with ourselves. I will keep writing a speaking to practice to come with yourself.

I will keep sharing everything that my mother has registered and my perception because the mind does not disappear.

I have ignored medicine, I and I respect but I also know they do not know so profoundly about the brain and the mind.

In this way we will discover, little by little in our lives, who we are.

Love ,
Jules