
I was was joking trying to decolonize my brain, but it also taught me how to reduce inflammation within myself. 😻,
Questions that contain the history of my dangerous injuries. Today I’ll give a summary.
In 2007, I had my first epileptic seizure at the age of 26, and today I am 44 years old.
My first epileptic seizure was in Morocco. My first hospital was in London, and my doctors were from Brazil. My first neurologist was Dr. Getúlio Rabello until he passed away, after many falls and brain injuries, and today it is Dr. Rodrigo de Holanda who found a new diagnosis that makes a lot of sense to me, considering everything I’ve been through.
They considered the possibility of multiple sclerosis starting in 2008, but my first epileptic seizure was in 2007, causing loss of seizure control and the onset of brain lesions. In 2012, they suspected hypoglossal nerve neuritis. They also considered schizophrenia of neurological origin, stroke, and cerebral vasculitis. In 2013 and 2017, I went into a coma due to epileptic seizures, and in the hospital they tried to slow my progression so that I wouldn’t
But returning to life, I found myself with many brain injuries, and if I write, it’s not to seek anything negative. It is more look another way.
In 2021, even while taking medication for epilepsy, the pain returned, and I went to the hospital again. Dr. Rodrigo de Holanda, who gave me the final diagnosis, diagnosed me with autoimmune encephalitis. Now I finally see and understand that everything makes sense.
I’ve already gone through several diagnoses, several brain injuries, and due to my abilities after these last injuries in 2021, I couldn’t even understand anything. But today I truly understand what I have
Autoimmune encephalitis
is a serious inflammatory disease where the immune system, which should protect the body, mistakenly attacks the body’s own healthy brain cells
This time, as a vegan and meditating, it made me decolonize myself from being against medicine; it was more about understanding what my diagnoses are like, trying to figure out how this destruction of my brain is happening
In 2021, I felt emotional things helping me break down, it was right when a close friend died. Five days later, I was hospitalized with a new brain injury. This time I lost face recognition, speech, and hallucinated. I started taking cortisone and rituximab. I remember that in the hospital I had low levels of vitamin L12 and iron.
But in 2022, my cholesterol from eating meat was high, so I decided to go back to being vegetarian, this time with the help of a nutritionist. She made me eat eggs and taught me that when I do eat them, I shouldn’t drink coffee so I don’t lose iron and calcium. It was also in 2022 that I started meditating again. But at the end of the year, my cholesterol returned
Then in 2023, Dr. Rodrigo said it must be my genetic cholesterol, and he made me fight just for fun to prove it, that I was going to be vegan, and that it wasn’t genetic.
I was worried about how I could do it , so I decided to start with Ayurveda. That’s when, little by little, I began to change my diet.
Veganism starts to attract criticism, but being vegan makes you more aware of the structure of food. I personally knew nothing about cooking, nor the basics of healthy eating.
As a vegan, I started eating many non-inflammatory foods, and some anti-inflammatory ones, without even knowing what the basis of the disease was. And it was even harder to understand how I was getting better. But today I understand how so many foods used to make my brain inflamed.
So Dr. Rodrigo de Holanda came up with this diagnosis of autoimmune encephalitis, which made me, out of my inability to go back and try to find out what I wanted to discover about my brain and my mind.
When I had to start taking Rituximab twice a year, I also had to have the CD-19 lymphocyte test, which is a specific marker for lymphocytes.
Rituximab is a drug that works by “switching off” specific cells in the immune system
By eliminating these cells, the medication stops the inflammation and protects your nervous system from further damage.
This is the test that shows if I need to take Rituximab. Of course, when I regained consciousness I tried to find out what Rituximab is
When I found out it was inflammation of my own brain, it made me reflect on how many hospitals I’ve been to, and it reminded me of how many people go there because they because what they eat.
On my vegan journey, and with my lactose-free diet, I’ve completely changed my eating habits. I feel better, I’ve started meditating again, I can understand what causes inflammation in my brain. And I’m no longer refusing medication.
It shocked me, almost everything I eat, without even knowing it, is anti-inflammatory, and the balance is nothing compared to what is related to inflammation in the brain and body
Sugar (vegans hardly eat any of it
Animals, food produced, etc
These days, when I found out, I went to see what veganism was and it helped me recover. .
In 2025 I started to understand the basics of vegan food, I went to learn
- Iron (Energy): Beans, lentils, and quinoa. (Rule: + Vitamin C).
- Calcium (Structure): Kale, sesame seeds, and broccoli.
- Vitamin B12 (Brain): Supplement.
- Vitamin D (Sun/Bones): Sun or supplement.
- Complete Protein: Brown rice + beans.
- Vitamins A and C (Defense): Carrots and citrus fruits.
- Omega-3 and Vitamin E: Flaxseed (always ground).
And when I came to find out what this exam is, I wanted to find out what’s inflamed in my brain
I discovered this last month, since not only do I eat a lot of what causes inflammation, but I’m also vegan. Last year I was supposed to take Rituximab twice a year, but I only needed it once.
When I went to find out about all the anti-inflammatory foods, I decided to eat everything that was anti-inflammatory.
Yes, let’s see if this lymphocyte 19 and 20 test I did yesterday comes back positive. If it’s 0, I don’t need Rituximab again. Let’s see if it turns out to be 0.
Can you believe I’m trying to observe my own brain’s diet? 🙂 But who knows, maybe a month of anti-inflammatory food can make this vegan battle much easier.
This diagnosis of mine has already made me lose hope of recovering. But in fact, I’ve discovered that nothing is negative; we can only accept the basis of our minds, of how we adapt
With loads love ,
Jule